Those that say that miracles don’t exist anymore, have not had the privilege to bear witness to the life of little, Jayden Woodson, for his amazing life can be described as nothing less than miraculous.
In utero, baby boy, Jayden was diagnosed as having hydrocephalus or fluid on his brain, and the decision was made that after his birth a shunt would be placed to drain the fluid so that he could live as normal a life as possible. A harrowing several days after his birth, the doctors were shocked to discover that their diagnosis had not been accurate….he did not in fact have fluid on his brain–he instead had fluid filling the cavity where his brain should have been also known as hydranencephaly. His family was given the devastating news that perfectly plump little Jayden, was born without a brain and that he was functioning on the reflexes of his brain stem which is what pumps the heart, regulates breathing, etc. They were instructed to say their goodbyes to Jayden, who although already on a respirator, would most likely not last through the night. Continue reading
Me as Queen Esther, Katherine as the “Gift of Salvation”, Brett–I have no idea, Cheryl as a Butterfly
When I was a little girl, I dreamed about dressing up as Mary Lou Retton for Halloween and going door to door collecting candy from the neighbors. I was so disappointed when my mom informed me that we weren’t going to go tricker-treating and I was going to have to choose a Biblical costume for our church’s Joy Jamboree (hokeyest name ever) instead of my favorite pixie sized Olympic gymnast. I asked my mom why we couldn’t go tricker-treating and she explained to me Continue reading
Today, my first baby, Jillian “Raine,” turns thirteen and gets to finally be the teenager that she has thought that she was since about the age of two. This morning she left for school, speaking in an Australian accent that she swears is British and dressed in imitation of “The Doctor” specifically the 9th Doctor from Doctor Who. I hugged her, kissed her, pinched her chubby cheeks, and sent her off to school shaking my head in wonder at how
strange amazing my little baby has grown to be. She is as tall as me now which is hardly an accomplishment, but I literally remember her just being born and the trauma beauty of giving birth to my first child. Continue reading
Today is Father’s Day, but it is also the eve of the first Heavenly birthday, of our beloved college cheerleading coach, Myron Doan. It is impossible to believe that a year has passed or that he is really gone.
My husband and I both have amazing fathers that we love dearly, but on this Father’s Day, I have found my thoughts resting with Myron. Myron may have not had biological children of his own, but he was a true father to so many. I know that I have written about this before, but to my husband, Jared, and I, Myron will always remain one of the most important pieces of our family. Continue reading
Recently, I found this list from The Pain Foundation, entitled “16 Things People In Chronic Pain Want You To Know” and it was a fun and excellent representation of what people in chronic pain truly do want others to understand. Inspired by this, I am have made my own list of things that I wish people could understand about my own, personal struggle with severe chronic pain.
1. It hurts just to be. I am always in pain whether or not I appear to be so. I have good days and bad days, but pain is my constant companion. Continue reading